A Little Bit of This & That

The Random Things We Love to Make and Do

Gluten Free Friday – University of Chicago Celiac Disease Center July 15, 2011

Filed under: Gluten Free Friday — Lizz @ 7:30 am
Tags: ,

Welcome to Gluten Free Friday!!

.

I have lots of wonderful information for anyone living in the Chicagoland area.  If you don’t, perhaps it’s worth checking to see if there are any programs like this in your area.  For now, I can only tell you what I’ve learned about our local Celiac Center…

.

The University of Chicago has a wonderful program called the Celiac Disease Center.  They have a great website that is loaded with information.  They have everything from study information, fact sheets, clinical trials, and disease overview.  You do not need to live in Chicago to have access to this helpful information.  To see all of this for yourself, go celiacdisease.net or *Click Here*

.

Here’s the good news for Chicagoland residents:  If you, or your child, have biopsy-verified Celiac Disease, you are eligible to receive a free care package.  (more info on this at the bottom of the post)

.

***Update:  If you see down in the comments area, Bob from the Celiac Disease Center told me that these care packages can be sent to anyone with Celiac throughout the United States!!  Yay for that!**

.

I wasn’t sure what to expect when I signed up for this one, but here’s what we got on our doorstep a few days ago:

.

.

Skylar wanted to use her face to help you all see just how big this package really was:

.

.

Not only was it big, but it was HEAVY!  We couldn’t wait to rip it open and see what goodies we would find inside.  And boy, did we find goodies!  Gluten free goodies!!

.

.

Wow!!  Snacks, desserts, breakfast foods, soup, condiments, and on, and on, and on…

.

What a great treat for someone who’s just learned their foods are limited.  Many of these items were donated by the manufacturers, while the others are purchased using donation money.  But that’s not all this care package included…

.

.

Tons of coupons! (Yay!)  They also included product information, local GF menus, and 2 issues of Living Without Magazine (A wonderful publication for people with food allergies, and gluten free diets)

.

We just sat back in awe of this amazing gift.  And what’s even more amazing is that this is just the beginning of what the Celiac Disease Center offers.

.

One of the best programs they offer is free Celiac testing, once a year in October.  You must register (starting September 15th), and this year’s testing date is October 15th.  On that same day, they hold a Q&A session with their head doctor, and hold a small vendor fair.  You do not need to register for these two events, so you can come even if you do not require testing.

.

These tests can get very expensive, and I love that U of C has found a way to provide it for people who are unable to pay.  There are also lots of other programs that go on throughout the year, and you can find all of that information on the website.

.

Lastly, it was just announced that the University of Chicago Celiac Disease Center will be hosting the 15th Annual International Celiac Disease Symposium September 22nd-25th, 2013.  Yes, that is quite a ways away, but you can sign up to be on their mailing list to get more information as it becomes available.  *Click Here* for that info.  This is an international event, and quite a large one, so this is very exciting news.

.

So there you have everything I can offer up about the amazing Celiac Disease Center at the University of Chicago.  Hopefully this can help some of you out there to get a little more support and information about Celiac Disease.  I know it certainly made for one seriously happy Celiac in our house.

.

.

Haha!  She just can’t keep her face out of the pictures!

.

So, here’s to a wonderful, happy, healthy, gluten free weekend everyone!

.

Lizz

.

P.S.  For those of you in the Chicagoland area, who are interested in connecting with the U of C for your own care package, *Click Here* for contact information

Advertisements
 

8 Responses to “Gluten Free Friday – University of Chicago Celiac Disease Center”

  1. […] original post here: Gluten Free Friday – University of Chicago Celiac Disease Center … ← Celiac- Learn How To Dine Out With Celiac Disease : Restaurant […]

  2. VanessaG Says:

    That is such a nice gift! I am new to your blog.Im enjoying reading it. Does your daughter have celiac disease? We thougt my younger brother did 2yrs ago. At that time we were excited that he did. Yeah, I know that sounds weird or awful, but we(drs) couldn’t figure out what was wrong. He was dying and was an actual case study. Kinda like mystery diagnosis show. Anyways, he’s 100% healthy due to power of prayer and some great drs. 🙂 but everytime I hear of someone with celiac disease, it hurts my heart. So thankful that there are alot more options for food than there used to be.

    • Lizz Says:

      Yes, my daughter was diagnosed with Celiac. I too found it to be more of a relief. I was happy that we knew what was going on, and we knew how to make her healthy again. I am very grateful that there are so many food options out there now for celiacs. Thank you so much for sharing, and I am happy to hear that your brother is doing better now. It’s hard to watch a loved one get so sick. I’m so glad you stopped by!

  3. Bob Roth Says:

    Thank you for your wonderful post about the hard-working people who have put together such amazing programs at the University of Chicago Celiac Disease Center!

    We hope to see you this week at Pinstripes (7/21) for our fundraiser: http://celiacdisease.net/fundraising

    We’d also love to have you follow us on Facebook (http://facebook.com/cureceliac) and Twitter (http://twitter.com/cureceliac) to stay up-to-speed on the latest discoveries and discussions about celiac disease!

    Thank you again!

    -Bob

    • Bob Roth Says:

      Would also like to clarify that we provide care packages to anyone in the United States, not just those near Chicago, who has had a biopsy in the last year, a positive diagnosis of celiac disease and has spoken with us via email or over the phone! Thanks again!

      • Lizz Says:

        Oh, thank you for the information. I will update this post so everyone knows they can take part in this fabulous program! Thanks for making my daughter’s day!

    • Lizz Says:

      Thank you so much for stopping by! I sadly can’t make the fundraiser, but I am looking forward to hearing about the next one!

  4. […] a sample when we got our gift basket from the University of Chicago (If you missed that post, *click here* for information on that amazing program).  I’m so happy we finally tried it!  We […]


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s